New Rheumatologist

After the big scare with calcification in my kidneys, my nephrologist (kidney specialist) referred me to a Rheumatologist he highly recommended.
I was nervous for this appt as I have never been able to find a good Rheumy.

It made it worse that we had all 3 kids so hubby had to stay in the car with them while I went in by myself, which I hate doing because I always forget stuff. But, this DR was AMAZING he looked at what the nephrologist sent over and then asked me what symptoms I have are. I explained, headaches WORSE than a Migraine, constant nausea and vertigo extreme fatigue, joint pain and swelling, muscle aches and spasms, rashes, sores in my mouth and nose, and seizures.I also have Fibromyalgia and that apparently causes pseudo seizures (fake) SO, he is working on getting me a prior auth through my insurance for a Neurologist at the Hospital he is affiliated with, St Joseph's Hospital and Barrow epilepsy center. SO this hospital has a wing designated for people with neurological issues and seizures. I will be admitted for 5 days and they will watch what type of seizures I have to make sure I'm on the right track with the meds. He also mentioned that a brain biopsy will eventually have to happen. That definitely scared me, but I am putting my trust in the hands of God. I didn't make it this far to give up!

Dr Celeriu (rheumy) upped my plaquenil dose and added 10mg prednisone to take daily. He said if things get much worse at all or the monitoring or brain biopsy of the brain shows something more severe or I just simply don't respond to treatment, the next step would be chemotherapy. This is something we all don't really want unless it is absolutely necessary!

But I have high hopes for this rheumatologist and the neurologist he sends me to.
PCP appt tomorrow, my favorite day of the month when I can get all of my medicine! Fingers Crossed my blood pressure isn't high again!

~~Sarah