Photo Journal Update

This entry I would just like to share some photos with you of my life this past month :) I've been in a constant flare, but I've had some good days! 

We got Emma a little kiddie pool. Each time I swam with her my flare acted up worse, but it was worth it! 

I was able to get out and shop! I had a big shopping girls days with my mom and my beautiful daughter Emma. 

At some points this month I just wanted a vacation from my body. 

Felt good to have the wind in my hair! 

This past weekend was super busy and took a lot out of me! But Emma got to spend lots of time with her two aunts Lylah (2) & Kyleigh (6). 

And here is a collage of pictures I made to celebrate my amazing husband! Today was his 25th birthday! We ate at Taco Bell and since we didn't have Emma with us with hung out at our local comic book store for a couple hours. I picked up all the comic books I had waiting in my file and we played some board games with some people while we were there. I had one seizure while at the comic book store, but our friend that owns the store helped me get to the couch in the back before my seizure started. 

Hope you enjoyed the pictures :)

-- Missie 

Watch out!

Watch out lupus & seizures! I plan on spending this weekend having fun with Shawn, Emma & my inlaws! I plan on not having any time for you! You probably have something different planned for me, but I don't care! I deserve a break! I want to chase Emma, Kyleigh & Lylah around and not get fatigued! I want to go swimming without taking breaks in case I get to shakey and worry about having a seizure. I want to be in the sun without my lupus rash flaring up all over my face & body! Screw you lupus and the horse you freaking rode in on! I know I'm not a normal healthy person, but I am sure going to try and live like one this weekend! Lupus be damned! 

-- Missie