Tuesday, July 16, 2013

Productive


I've had a hard time trying to be productive. When someone is watching my daughter for me I just look at the mess in my bedroom and get so overwhelmed that I have to sit down! I've had a continuous flare since spring it seems and when I do have good days I use those days to spend time with my family. My husband has been really good at not saying anything about the house. I know he's thinking it though. Today I'm determined to clean! Even if it's just for a little bit! Can't over do it today or Wednesday. I'm going to the zoo with two other moms and I'm going to need all the extra spoons on Thursday that I can get! I hope y'all are well! - Missie 

Tuesday, July 9, 2013

Butterfly Warriors Fundraiser


We're spreading the word of this fundraiser, Butterfly Warriors is a separate Lupus Awareness group from us. 

Butterfly Warriors is doing a fundraiser to save money for school supplies for kids with lupus! The website is www.butterflywarriors2013.com ! The end date is August 1st, 2013.  

Monday, July 8, 2013

Don't Remind Me

Ok, I have seizures and other chronic illnesses that causes brain fog. I forget stuff, A LOT of stuff. Went to the Grand Canyon for the first time a few months ago, I have ZERO memory of it.
Well, I have been very sick & having seizures & lots of other severe symptoms. My husband can't really miss work as he has been allowed OT (who can pass that up?) So, the girls & I have been staying with my in laws. (Which has it's perks! My in laws are in love with our girls & they are amazingly good to me!) Well they have all decided to go to the Grand Canyon tomorrow. My mil says she'll help but she gets distracted with her sisters visiting & is no help, so I'm on my own.
Then I'm like "what are we doing all day at Grand Canyon with 3 kids?! Then my fil says! " Well we just ride the 4 shuttles from stop to stop" I'm like ,shuttles? Mom says "yeah you don't remember yelling at the driver last time because you can't bring the strollers on & have to fold them up at leave them up front?" I was like I don't remember the trip.of course I don't remember that! And she keeps talking about it & laughing about it. It's not funny! I don't remember!  One thing I beg my husband is if I say I don't remember something, don't keep talking about it & laugh at me about it! Now, on top of over doing ing it today & having 7 seizures in 24 hours. I have to get up at 6am to get myself & 3 kids ready, ride 2-3 hours in the back a 14 passenger van when I get carsick & battle vertigo. And go allllllll day walking pushing a stroller watching 3 kids and getting on & off shuttles then drive home. As sick as I have already been, I wont doubt if I end up in the ER tomorrow night! I am so sick TO DEATH if explaining what.OVER-DOING it means & the issues it causes. Guess they'll witness it first hand tomorrow! ~~Sarah