Meloxicam update 1

I called my doctor's assistant today and left her a message on her voicemail tellin her about how bad my pain was last night. I asked to possibly be put on a different arthritis medication and for a pain med stronger than Tylenol, but not so strong that it'd render me totally useless for my daughter and husband. I'll post another update after I get a call back and let y'all know how that goes. 

-- Missie 

Meloxicam

Anyone else on Meloxicam? It's for arthritis and I've been taking it since Wednesday morning. It's one pill a day and you can't take aleve with it. Last night I was in so much pain I cried, couldn't sleep and couldn't move!!! Finally I managed to take a hydrocodone and slept 4 hours before Emma woke me up. I wasn't in pain when I woke up, but damn I am now :( I'm calling my PCP today to see if they can prescribe me something else and some pain meds. -- Missie 

Productive

I've had a hard time trying to be productive. When someone is watching my daughter for me I just look at the mess in my bedroom and get so overwhelmed that I have to sit down! I've had a continuous flare since spring it seems and when I do have good days I use those days to spend time with my family. My husband has been really good at not saying anything about the house. I know he's thinking it though. Today I'm determined to clean! Even if it's just for a little bit! Can't over do it today or Wednesday. I'm going to the zoo with two other moms and I'm going to need all the extra spoons on Thursday that I can get! I hope y'all are well! - Missie 

Butterfly Warriors Fundraiser

We're spreading the word of this fundraiser, Butterfly Warriors is a separate Lupus Awareness group from us. 

Butterfly Warriors is doing a fundraiser to save money for school supplies for kids with lupus! The website is www.butterflywarriors2013.com ! The end date is August 1st, 2013.  

Don't Remind Me

Ok, I have seizures and other chronic illnesses that causes brain fog. I forget stuff, A LOT of stuff. Went to the Grand Canyon for the first time a few months ago, I have ZERO memory of it.
Well, I have been very sick & having seizures & lots of other severe symptoms. My husband can't really miss work as he has been allowed OT (who can pass that up?) So, the girls & I have been staying with my in laws. (Which has it's perks! My in laws are in love with our girls & they are amazingly good to me!) Well they have all decided to go to the Grand Canyon tomorrow. My mil says she'll help but she gets distracted with her sisters visiting & is no help, so I'm on my own.
Then I'm like "what are we doing all day at Grand Canyon with 3 kids?! Then my fil says! " Well we just ride the 4 shuttles from stop to stop" I'm like ,shuttles? Mom says "yeah you don't remember yelling at the driver last time because you can't bring the strollers on & have to fold them up at leave them up front?" I was like I don't remember the trip.of course I don't remember that! And she keeps talking about it & laughing about it. It's not funny! I don't remember!  One thing I beg my husband is if I say I don't remember something, don't keep talking about it & laugh at me about it! Now, on top of over doing ing it today & having 7 seizures in 24 hours. I have to get up at 6am to get myself & 3 kids ready, ride 2-3 hours in the back a 14 passenger van when I get carsick & battle vertigo. And go allllllll day walking pushing a stroller watching 3 kids and getting on & off shuttles then drive home. As sick as I have already been, I wont doubt if I end up in the ER tomorrow night! I am so sick TO DEATH if explaining what.OVER-DOING it means & the issues it causes. Guess they'll witness it first hand tomorrow! ~~Sarah

Photo Journal Update

This entry I would just like to share some photos with you of my life this past month :) I've been in a constant flare, but I've had some good days! 

We got Emma a little kiddie pool. Each time I swam with her my flare acted up worse, but it was worth it! 

I was able to get out and shop! I had a big shopping girls days with my mom and my beautiful daughter Emma. 

At some points this month I just wanted a vacation from my body. 

Felt good to have the wind in my hair! 

This past weekend was super busy and took a lot out of me! But Emma got to spend lots of time with her two aunts Lylah (2) & Kyleigh (6). 

And here is a collage of pictures I made to celebrate my amazing husband! Today was his 25th birthday! We ate at Taco Bell and since we didn't have Emma with us with hung out at our local comic book store for a couple hours. I picked up all the comic books I had waiting in my file and we played some board games with some people while we were there. I had one seizure while at the comic book store, but our friend that owns the store helped me get to the couch in the back before my seizure started. 

Hope you enjoyed the pictures :)

-- Missie 

Watch out!

Watch out lupus & seizures! I plan on spending this weekend having fun with Shawn, Emma & my inlaws! I plan on not having any time for you! You probably have something different planned for me, but I don't care! I deserve a break! I want to chase Emma, Kyleigh & Lylah around and not get fatigued! I want to go swimming without taking breaks in case I get to shakey and worry about having a seizure. I want to be in the sun without my lupus rash flaring up all over my face & body! Screw you lupus and the horse you freaking rode in on! I know I'm not a normal healthy person, but I am sure going to try and live like one this weekend! Lupus be damned! 

-- Missie